Walter Henry Thomas
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Walter Thomas
What's New
Special Thanks
Videos
OMS Doctors
Links
Links
New
OMS Workshop April 10, 2010
Children with OMS sites
http://www.anna-merkel.de/
(Anna Merkel's site) Google's Chrome browser will translate
http://jameskara.blogspot.com/
(Amelia and Family site)
http://iwillliftmyeyesconnorkhoury.blogspot.com/
(Connor Khoury's site)
http://www.makhiwoodman.blogspot.com/
(Makhi Woodman's site)
http://zoecadence.homestead.com/
(Zoë Cadence Walenius's site)
http://www.chaseaway.org/
(Chase Brosnan's site and Foundation)
http://www.vimeo.com/10151845
(Soham's journey with OMS (Video of Soham Joshi)
http://www.caringbridge.org/visit/tylerhiggins/mystory
(Tyler Higgin's site)
Current Clinical Trials in USA
Study of Cytokines in Children With Opsoclonus-Myoclonus Syndrome (OMS)
Effectiveness of Rituximab in Pediatric OMS Patients
Cyclophosphamide and Prednisone With or Without Immunoglobulin in Treating Abnormal Muscle Movement in Children With Neuroblastoma
Immunotherapy of the Paraneoplastic Syndromes
Use of Rituximab in Opsoclonus-Myoclonus in Children With Neuroblastoma
Other Links
Opsoclonus Myoclonus Support Network http://www.omsupportnetwork.org/
National Organzation for Rare Disorders NORD http://rarediseases.org/
OMS Group (Very Active) http://health.groups.yahoo.com/group/OMSFamilies/
National Pediatric Myoclonus Center (Must read for OMS) http://www.omsusa.org
Dancing Eye Syndrome Support Trust (UK support Group) http://www.dancingeyes.org.uk/